A vivacious teenager
with maturity beyond his years, Don Monti dreamed of being the first
physician-scientist on the moon, says his mother Tita Monti, as she
sits in her seventh floor office in the Don Monti Memorial Pavilion
at North Shore University Hospital in Manhasset. Born in 1955, Don was
inspired by the creation of the Kennedy Space Center and the daring
adventures of manned space flight. During his junior high school days,
he built accurate models of rockets.
Don Monti was diagnosed
with myeloblastic leukemia in April 1971, and when he went to North
Shore, a small community hospital at the time, he brought along his
favorite models.
"There were
things hanging in his room," says Mrs. Monti, who mirrors Don's
enthusiasm as she speaks of her second child. "Don surprised his
physician, Dr. Degnan, who walked smack into the Space Center."
Mrs. Monti remembers
cooking meals in Don's room. "We tried to live a normal life. We
thought we were keeping a secret from him, but I believe, bright and
alert as he was, he was doing the same for us." Reflecting on Don's
personality, she quietly recalls, "He was warm and had a gentle
heart. He was into art and music, had many friends, our house was always
open to his friends, and he was close to his family." By age 16,
Don had battled his illness for 14 months.
"On the night
he died, when I left his room - it was 10 p.m., June 21, 1972 - I walked
to the nurses station and the doctors and nurses were crying. I said,
what are we going to do?" On that night of the first day of summer,
Mrs. Monti did two things to rekindle life from the depths of tragedy:
she vowed to bring the best of care to patients suffering from this
dread disease and she began her personal survival plan.
"We kept Don
at North Shore because we thought he would never get better care anywhere
but right here," gestures Mrs. Monti. "We had nothing,"
she says, describing the limited hospital facility then, and continues,
"but the proper people, young people. I know that at that moment
I felt we were on to something. I wanted to start something small and
keep the department going."
This year, the Don
Monti Memorial Research Foundation, which began in Tita Monti's heart,
celebrates 32 years of raising funds for research, patient treatment,
physician fellowship and education programs. "For me, it was meant
to be. In the coming weeks, we established a board of directors Ühospital
staff, friends, a wide variety of people who worked for my husband and
I.
"I started
with cancer meetings (support groups) and the idea took hold. Then we
put it on paper," Mrs. Monti recalls. "In the beginning, there
were tremendous contributions" made in Don's memory.
Within six months,
Mrs. Monti had arranged the first annual ball, now the Foundation's
biggest fundraiser, held at Monti's Town and Country on Jerusalem Avenue.
In years following, the ball moved to the Crest Hollow Country Club
in Woodbury, which the Monti family owns and operates. Tita and her
husband Joseph promised to underwrite all the ball's expenses so that,
Tita says, "the proceeds go 100% to the hospital Ü not for
brick and mortar, but for patient care and research."
Mrs. Monti calculates
that during these 32 years, through personal donations, Foundation underwriting
expenses, the journal and fundraising efforts of the Ball, and estate
donations from those whom the center has benefitted she and her family
have raised over $30 million for the cancer cause. Mrs. Monti strongly
believes that serious work can be done to advance cures for many diseases
if more people would underwrite research, building funds and ancillary
programs.
"We started
with 800 people at the first ball. It's a very elegant, very formal
affair, and it's all heart," comments Mrs. Monti. Recalling the
major preparation work that the ball entails, Mrs. Monti compliments
the staff at the Crest Hollow: "They work on committees. Members
of the office staff have come to my house for planning meetings, and
the ladies have handwritten invitations. They're proud to be a part
of it."
Recent ball guest
lists have tipped 1200.
The 2003 Don Monti
Research Foundation "Ball of the Year" will be held on Thursday,
December 11, at the Crest Hollow Country Club. Edward Travaglianti is
serving as general chairperson.
Mrs. Monti devised
programs to ease patients' lives and recognize victories along the treacherous
road of the cancer experience. In the Seventies, she says, "I considered
how people traveled to the hospital for treatment: they took a bus or
came by private car. I thought about furnishing a car or small bus so
that we could go to the homes of those who were too sick or for whom
travel was uncomfortable. In 1977, we bought our first vehicle and called
it the Love Van."
Manned by a doctor,
a nurse and a technician, the Love Van made it possible for patients
to receive chemotherapy and blood work at home. Eventually, three vans
were funded by the Foundation. With changing times, insurance difficulties
crept in, but with more families owning cars, doctors were able to see
patients at the hospital, and the love vans became part of Foundation
history.
Citing early detection
in the disposition of illness and disease, Mrs. Monti enthusiastically
supports Screening Day, a free service provided at the North Shore Manhasset
facility. "We don't realize how many people never see a doctor,"
she says. In May, the hospital held its seventh annual event, made possible
through the Foundation and the generous services of hospital staff,
who offer their time at no charge. "The chiefs of the nine cancer
divisions participate and we provide everything right down to a dentist,"
states Mrs. Monti.
Open to all ages,
guests from Queens and Long Island are screened for five different types
of cancer Ü prostate, breast, colorectal, thyroid and oral. Informational
displays review topics from skin cancer, children's cancer and nutrition
to pain management, home care and support groups.
Mrs. Monti never
dreamed that her desire to "keep the department going" would
mushroom into a full-blown foundation offering a wide range of support,
and she confesses, "I never thought we'd have a building."
But in fact, in 1992, through contributions from the Foundation and
funding from New York State, North Shore completed the Don Monti Memorial
Pavilion in honor of Joe and Tita's years of dedication in the fight
to overcome leukemia.
Today, North Shore
University Hospital at Manhasset houses the Don Monti Division of Oncology/Hematology,
the Don Monti Memorial Research Laboratory and the Don Monti Adult Bone
Marrow Unit. The Division is the largest cancer patient care, medical
research and education network on Long Island. In addition to Manhasset,
Don Monti Cancer Care Centers have been established at several North
Shore-Long Island Jewish Health System affiliates: Franklin Hospital
Medical Center, North Shore University Hospitals at Forest Hills, Glen
Cove and Plainview, Huntington Hospital and Southside Hospital. The
Centers' services to inpatients and outpatients include chemotherapy,
psychosocial counseling, nutritional consultation, pain management,
support care, and cancer genetic counseling.
At 83 years old,
Mrs. Monti serves in a non-salaried position for the Don Monti Foundation.
She usually arrives at her office at 10 a.m. and doesn't leave before
four. "The day goes so quickly. There's never two days in a row
that are the same," she says. "I have interviews with people
in the health and cancer fields, and I visit with the patients. My door
is always open." Sharing feelings with the patients is the most
important part of Mrs. Monti's day.
"The first
thing I see is their fright. Nothing makes sense," comments Mrs.
Monti. Compassionately and humbly, she helps them begin to understand
their illness. She helps patients see that many people go into remission;
that there are treatments that can help them manage pain; that they
can meet people, become friendly with others and attend support groups.
"I'm always
providing hope. Through me, the patients are looking forward to what's
coming. I'm very positive," says Mrs. Monti, who is slight in stature,
yet gutsy and sincere. "And when the patients go home, they always
stop to say goodbye. Do you know how I love that? That's the best part
of my day. I know they're getting better. From time to time, it can
be very sad, but there have been miracles."
One of Mrs. Monti's
favorite events is Survivors Day. "It's a day of celebration for
all our patients who are surviving." This June, over 1,000 survivors
gathered under an outdoor tent at the hospital's campus, enjoying a
luncheon and music, meeting others, sharing experiences. Mrs. Monti
says leukemia victims are living more comfortably, and recoveries happen
more often.
"I think a
cure is right around the door. We're on the doorstep," Mrs. Monti
emphasizes. "Our goal is a cure, so there won't be a Survivors
Day anymore. It will be the end of cancer." For over 30 years,
Mrs. Monti has carried on Don's battle to overcome leukemia. She finds
her energy in Don: "He's the model. Although he's not here today,
I'm here every day."
Before initiating
the Don Monti Foundation, this feisty, charming and determined crusader
found her joy in music, studying piano since age four and participating
in concerts. Mrs. Monti holds a B.A. degree in elementary education
from St. Lawrence University in Canton, New York, and taught exceptional
children on the pre-school to third grade level. She raised three children,
Caroline, Don and Richard, and after 59 years of marriage, which she
credits to perseverance, she banters, "Joe and I are partners for
life. He thinks like I do." The couple has nine grandchildren and
six great-grandchildren. Richard, currently the Executive Vice President
of the Crest Hollow Country Club, serves as a trustee at North Shore
University Hospital, along with his mom and sister, who are associate
trustees. The Monti family members support the Foundation, with Mrs.
Monti as president, Joseph Monti as chairman of the Board of Directors,
and Caroline, her husband Arthur, Richard and their cousin Donald Monti
serving as trustees.
Sands Point residents,
Joseph and Tita often open their home to the doctors, nurses, staff,
board members and their families from North Shore Hospital. Year after
year, Mrs. Monti delights in hosting June parties for hundreds of people,
providing food and beverages, and face painting and a carousel for the
children. "I love them all. They have tender hearts," she
remarks, adding, "I'm the luckiest person in the world. I'm never
lonely."
"God willing,
we want to keep doing what we're doing," says Mrs. Monti with a
determination traceable to her Greek heritage. "No matter how horrible
things may seem in our lives, it can never compare to what all these
little people with leukemia are going through every day of their lives.
You have to have pathos."